His death was not related to Costochondritis, but a heart attack.
Please feel free to add any comments you wish to his blog.
Regards
Julia (Cleveland's wife) xx
Wednesday 22 August 2012
Gone but Never Forgotten
For those of you that have been following this blog, it is with great sadness that I must inform you that Cleveland passed away suddenly on 3rd August 2012.
His death was not related to Costochondritis, but a heart attack.
Please feel free to add any comments you wish to his blog.
Regards
Julia (Cleveland's wife) xx
His death was not related to Costochondritis, but a heart attack.
Please feel free to add any comments you wish to his blog.
Regards
Julia (Cleveland's wife) xx
Monday 30 July 2012
This Fragile Life
Well this is just great, here I am moaning about how Costochondritis has made my life so hard, and along comes a new problem to help me forget. This weekend I found out my father(dad) had a heart attack, and is now in need of a triple by-pass.
See you think yours is the most important life, but it takes a serious problem to make you realise. Although i am in lots of pain, the fact that my Dad needs me, i fight through the pain. only to collapse in a heep for some well earned rest.
As i said life is very fragile i know my parents are getting older, i guess i should already be thinking they will soon pass away. But in my mind I am still just their kid and i still worry about loosing them. As im sure my kids worry about me when i get rushed to the hospital.
We are on this earth for a short while. I say we should enjoy every minute, with friends and family, because you never know when you will next see them.
I pray my Dad will be ok....!
See you think yours is the most important life, but it takes a serious problem to make you realise. Although i am in lots of pain, the fact that my Dad needs me, i fight through the pain. only to collapse in a heep for some well earned rest.
As i said life is very fragile i know my parents are getting older, i guess i should already be thinking they will soon pass away. But in my mind I am still just their kid and i still worry about loosing them. As im sure my kids worry about me when i get rushed to the hospital.
We are on this earth for a short while. I say we should enjoy every minute, with friends and family, because you never know when you will next see them.
I pray my Dad will be ok....!
Thursday 26 July 2012
Spread the word.
Hi a few fellow sufferers of Costchondritis, have come up with the idea of starting a charity, to enable us to spread the word, about this illness.Reading through the goverment guidelines on starting a charity, it appear a little more complex, i dont think we have enough research to go ahead straight away, but with the support of everyone we can decide what is the best
medium to use to spread the word, website, leaflets,booklet, forums, and many others i can think of. So im hoping readers of my blog will have ideas of what is the best way to spread the word.
Please leave a comment on this post, we can then decide what would be the best way forward from here. Lets get our message out there, and see what we can do !
If you would like to read more about starting a charity, click here
Little lump
Ok so, taking my shower this evening, I manage to press a little hard on my chest, right on the spot where my injections were, and it hurt so much, I could hardly think what to do. Anyone while thinks this illness is not serious, should just feel that pain for just a minute, they would soon enough realise, the pain we go through on a daily basis.
Now once I got over the initial ouch, I felt the area and notice I had a little lump, I'm told I have had it before, but to be honest I don't remember. But it was a little worrying. It's about 2" in size and pretty hard, although I'm not gonna press it too hard, don't fancy the pain. I'm gonna just keep checking everyday, hopefully it will disappear.
Now once I got over the initial ouch, I felt the area and notice I had a little lump, I'm told I have had it before, but to be honest I don't remember. But it was a little worrying. It's about 2" in size and pretty hard, although I'm not gonna press it too hard, don't fancy the pain. I'm gonna just keep checking everyday, hopefully it will disappear.
Monday 23 July 2012
Olympic Torch Relay
So this was a great day for me and family,although I was not so keen on the start of my day. With the kids standing over me waking me up. Alright so I had coffee brought to me in bed. But still my crap illness don't like such an early start.
Well they got me outta bed, dressed and out the house before mid-day, climbed up the massive hill up my road ( called Grange Hill btw). That was a seriously hard climb. In my condition it was like climbing a mountain. Anyway there we are, joined by a few hundred people lining the road. I got my camera out, and before we could blink, there was lots of cheering, and within seconds this young lad flew by carrying the torch, lucky my camera was in hand or we would of missed it. So now I can say. I was there I saw the torch go by, all 30seconds of it, and I even took a photo. Then back down the hill. And back to bed (I wish).
Well they got me outta bed, dressed and out the house before mid-day, climbed up the massive hill up my road ( called Grange Hill btw). That was a seriously hard climb. In my condition it was like climbing a mountain. Anyway there we are, joined by a few hundred people lining the road. I got my camera out, and before we could blink, there was lots of cheering, and within seconds this young lad flew by carrying the torch, lucky my camera was in hand or we would of missed it. So now I can say. I was there I saw the torch go by, all 30seconds of it, and I even took a photo. Then back down the hill. And back to bed (I wish).
Sunday 22 July 2012
Costochonral nerve block
Well guys, I finally had my injections on Thursday. So hopfully the pain will be a little more controlled for a couple of months.
Only problem is at this moment it hurts like hell, every time I move, it's like someone is stabbing me in the chest. Today has been the first day I have had the guts to move a bit more. I pulled off the plaster which was covering the spot. It's purple under there and there is a little bump which is really sore. My son tried to give me a hug, and it hurt so much, he was worried he hurt me but I said it was ok ,just an accident as he put his shoulder into my chest. All I could say was Ooooouch, I hate this illness. But at least I will be ok for a while.
I must say to anyone whole has this illness, the injections do hurt at first but once the initial pain is over you can almost have a normal life, I will ,still be on my list of medication,
But least they will now feel like they are doing something. So if you get the chance go for it.
Only problem is at this moment it hurts like hell, every time I move, it's like someone is stabbing me in the chest. Today has been the first day I have had the guts to move a bit more. I pulled off the plaster which was covering the spot. It's purple under there and there is a little bump which is really sore. My son tried to give me a hug, and it hurt so much, he was worried he hurt me but I said it was ok ,just an accident as he put his shoulder into my chest. All I could say was Ooooouch, I hate this illness. But at least I will be ok for a while.
I must say to anyone whole has this illness, the injections do hurt at first but once the initial pain is over you can almost have a normal life, I will ,still be on my list of medication,
But least they will now feel like they are doing something. So if you get the chance go for it.
Thursday 19 July 2012
Summer Concert
So Monday was my little girls summer concert, which again I had to do all I could to go see. And boy was I in for a treat, at first it seemed like all other school productions, until they worked out there was some real talent at the school. There was a few young ladies we shall have to look out for. Beautiful voices, it was such a great show. My princess played her guitar this was the first proper performance she has done that I could see, she was great, looks like the lessons are paying off now. Then just to put the icing on the top, she sang in a group with 6 other kids. They surprised us all, great voices you would not of thought they were only 10 years old, they performed better than some artists I have seen, it was truly a great show. I went home so proud, and would you believe it my Costochondritis did not flare up. So I really did have a good night...!
Wednesday 11 July 2012
International day
So yesterday was international day at my daughters school. This is where parent and child walk around the school, going into the different classrooms,and in each class is information about the various different countries. Its loads of fun for parent and child, I have tried to go every year.
But looks like this year, was a bad idea from the moment I woke up, I could feel my chest was heavy and sore, I should really of just stayed where I was, but I knew my girl would be disappointed if I did not go with her. This is the real part of this illness that I hate, I always try my best to do things with my family although this illness means I have to always fight.
I managed to go to the school, although I was walking a little slow. We did manage to walk around and saw things from 7 commonwealth countries. There was music, food, activities lots to keep us occupied, i could see she had fun.
The real problem came when we had to walk back home, I live on a hill, and it takes forever for me to climb, and this was goona be tough. When we got home I was soaked after the walk, if you had seen the state I was in you would of thought I ran a marathon. I climbed onto my bed, took my meds (which did not help), had to talk some of the hard stuff. Sometimes I forget that I have this illness only for a little while, normally just enough for me to think I can do as I please.
Costochondritis always reminds me whose really in charge,and it normally ain't me. Well at least this time, my girl and I had a good time for a while.
But looks like this year, was a bad idea from the moment I woke up, I could feel my chest was heavy and sore, I should really of just stayed where I was, but I knew my girl would be disappointed if I did not go with her. This is the real part of this illness that I hate, I always try my best to do things with my family although this illness means I have to always fight.
I managed to go to the school, although I was walking a little slow. We did manage to walk around and saw things from 7 commonwealth countries. There was music, food, activities lots to keep us occupied, i could see she had fun.
The real problem came when we had to walk back home, I live on a hill, and it takes forever for me to climb, and this was goona be tough. When we got home I was soaked after the walk, if you had seen the state I was in you would of thought I ran a marathon. I climbed onto my bed, took my meds (which did not help), had to talk some of the hard stuff. Sometimes I forget that I have this illness only for a little while, normally just enough for me to think I can do as I please.
Costochondritis always reminds me whose really in charge,and it normally ain't me. Well at least this time, my girl and I had a good time for a while.
Monday 9 July 2012
Sleep
Did not get much sleep last night, after my stomach turning over most of the night, my chest decided to hurt that little more. My pills just did not seem to have much help. I did fall asleep for a while, but woke up feeling like someone was sitting on my chest. So I been awake/asleep since then. I feel so tired but can't sleep.
Btw I have added some more information to my 'Who am I' and "history" page....! And give the site a new look. I also added some of my drawings, take a look Tell me what you think.?
Well it's 11:30 pm been struggling today with pain, and after last night, I decided to take a couple of sleeping pills, hopefully get some well needed rest. So I guess it's goodnight from me.
Btw I have added some more information to my 'Who am I' and "history" page....! And give the site a new look. I also added some of my drawings, take a look Tell me what you think.?
Well it's 11:30 pm been struggling today with pain, and after last night, I decided to take a couple of sleeping pills, hopefully get some well needed rest. So I guess it's goodnight from me.
Shopping trip
Seems like i need to get the hang of this blogging, I know I need to try and post everyday. But this condition gives me quite a few uneventful days. So I guess I will just keep writing, and hoping it gets better.
So it's late Saturday night, sunday morning. I have had a few of those,must do days, you know when you don't feel like doing anything, but you know you have to. Although I managed to get out of bed, and even leave the house, I been very slow to move. It's like every step i take, my chest decides to hurt more. I remember when this all started and a doctor, asked me why I was walking so slow, kinda shuffling, I said I didn't know. But it just hurts. Now looking back I can say for sure when costo has flared up fully, it's almost impossible to move.
When Costo does flare its hard on everyone around you, walking home slowly, my son came to meet me and carry my shopping bags (what a star). The bags were not even that heavy, but after a day running around,they felt like I was carrying a bag full of bricks.so there Iam struggling, if you saw me you could almost feel the pain. Each step so difficult, tears in my eyes, it hurt tons. You coud see my son was really concerned, all he kept doing was saying dad just stop and rest, your over doing it. All I could do was laugh, and say its hurting loads today, because I was not wearing my superman shirt..lol even that laugh hurt.
It's really hard having this condition, with young children, they don't always understand why one day your full of beans and able to do just about anything. Then the next day, I'm so weak. Its hard to understand.
Now here's something of interest, I seem to have put on a bit of weight, it's so funny, because a lot of the time I look like im about to give birth, my stomach just bloats up.i been moaning for ages about it, and finally decided to investigate on google.at first glance I can softly say, I have a problem with my diet, so now we just need to find out what's causing it....I think perhaps wheat, pasta. So I have started a food diary, gonna do it for about a week, and see if there is some reasoning behind this.
So watch this space for more information.
So it's late Saturday night, sunday morning. I have had a few of those,must do days, you know when you don't feel like doing anything, but you know you have to. Although I managed to get out of bed, and even leave the house, I been very slow to move. It's like every step i take, my chest decides to hurt more. I remember when this all started and a doctor, asked me why I was walking so slow, kinda shuffling, I said I didn't know. But it just hurts. Now looking back I can say for sure when costo has flared up fully, it's almost impossible to move.
When Costo does flare its hard on everyone around you, walking home slowly, my son came to meet me and carry my shopping bags (what a star). The bags were not even that heavy, but after a day running around,they felt like I was carrying a bag full of bricks.so there Iam struggling, if you saw me you could almost feel the pain. Each step so difficult, tears in my eyes, it hurt tons. You coud see my son was really concerned, all he kept doing was saying dad just stop and rest, your over doing it. All I could do was laugh, and say its hurting loads today, because I was not wearing my superman shirt..lol even that laugh hurt.
It's really hard having this condition, with young children, they don't always understand why one day your full of beans and able to do just about anything. Then the next day, I'm so weak. Its hard to understand.
Now here's something of interest, I seem to have put on a bit of weight, it's so funny, because a lot of the time I look like im about to give birth, my stomach just bloats up.i been moaning for ages about it, and finally decided to investigate on google.at first glance I can softly say, I have a problem with my diet, so now we just need to find out what's causing it....I think perhaps wheat, pasta. So I have started a food diary, gonna do it for about a week, and see if there is some reasoning behind this.
So watch this space for more information.
System dump
Nothing like sitting up late at night, wanting to go to sleep my body has a different idea, can't sleep as my chest is playing up. I been online for a while now, looking for someone to chat with, no luck yet. So how was your day, mine has been pretty much ok. except my body seems to be doing a system dump, I'm wondering if this is a way off getting some of those medicines out of my body. I seems to happen every month. I have never really noted when it happens, but I will have to monitor it more carefully. i will make notes in my food diary. I don't mind it because it is nice to have a clean out. Its just why does it hurt so much.
Well I shall have to take a sleeping pill, and hope i will fall asleep soon.
By the way, as i am getting more visitors to this little site, i am finding i have to write more. If you want please leave a comment, i am always here.
Well I shall have to take a sleeping pill, and hope i will fall asleep soon.
By the way, as i am getting more visitors to this little site, i am finding i have to write more. If you want please leave a comment, i am always here.
Sunday 1 July 2012
Pain Management
Hi all,
Sorry I have not posted much for a while, life been a little crazy, and my Costo is having revenge !
Friday I had to see my pain manager consultant. Talk about hard, took forever to walk to the bus stop. If I wasnt so poor I would of got a cab. Each step was painful. Reminding me that my Costo is a real illness.
Anyway doctor has agreed to do another nerve block on the 19th so looking forward to it, as it did ease the pain for a few months. We spoke about changing my meds, but he was reluctant to do anything until after my surgery.
I know it's just a small procedure but it still worries me, as they knock me out to do it. Least when it's done I won't be afraid to walk out my front door. Other than that life is fine, my little man, who is not so little these days, he sent me a text which was like OMG it made me smile for days....still smiling.
Sorry I have not posted much for a while, life been a little crazy, and my Costo is having revenge !
Friday I had to see my pain manager consultant. Talk about hard, took forever to walk to the bus stop. If I wasnt so poor I would of got a cab. Each step was painful. Reminding me that my Costo is a real illness.
Anyway doctor has agreed to do another nerve block on the 19th so looking forward to it, as it did ease the pain for a few months. We spoke about changing my meds, but he was reluctant to do anything until after my surgery.
I know it's just a small procedure but it still worries me, as they knock me out to do it. Least when it's done I won't be afraid to walk out my front door. Other than that life is fine, my little man, who is not so little these days, he sent me a text which was like OMG it made me smile for days....still smiling.
Monday 25 June 2012
Bored
Hi, Thanks for reading my blog, this has been an uneventful weekend for me really, I started Saturday with a pain in my hip, basically making every step I take hurt like hell, so I decided I would not move very much. My chest was also playing up a little more than normal.
I hate times like this, not only does my body hurt but my mind suffers too. It's been just over a week since I picked up a pencil to draw, infact I have not really been I the mood for anything. Must be my depression taking over again. I do try and fight but sometimes, hurting so much, I just dont feel like much. So spent my time, playing the sims (so addictive). And watching all the program's on TV about the royal family. It's amazing how great Great Britian really is, I promised my daughter I would take her to see the crown jewels. Didn't realise that's something I have never done. It's funny we live so close and don't visit the places of interest on our doorsteps. Oh and I have added some text to my about me section, just a little background, about me, let a you better get to know the person behind these pages.
I hate times like this, not only does my body hurt but my mind suffers too. It's been just over a week since I picked up a pencil to draw, infact I have not really been I the mood for anything. Must be my depression taking over again. I do try and fight but sometimes, hurting so much, I just dont feel like much. So spent my time, playing the sims (so addictive). And watching all the program's on TV about the royal family. It's amazing how great Great Britian really is, I promised my daughter I would take her to see the crown jewels. Didn't realise that's something I have never done. It's funny we live so close and don't visit the places of interest on our doorsteps. Oh and I have added some text to my about me section, just a little background, about me, let a you better get to know the person behind these pages.
Thursday 21 June 2012
Day in bed
Yesterday I spent in bed, was in pain most of it. Took until my evening meds before it started to feel better. Today Thursday has started much the same.
So it's bedtime, today has been like most of my days. It's funny sat at home doing very little, I feel like there is no pain, until I start to do stuff, even the short walk to the loo. Ends with me wondering why I moved. If I could just sit still I would be ok, least hardly no pain.
Some days I feel like superman I could do anything. Chances are soon as I stand up my chest will hurt... Costo so much fun. I would give anything to be back at work.
So it's bedtime, today has been like most of my days. It's funny sat at home doing very little, I feel like there is no pain, until I start to do stuff, even the short walk to the loo. Ends with me wondering why I moved. If I could just sit still I would be ok, least hardly no pain.
Some days I feel like superman I could do anything. Chances are soon as I stand up my chest will hurt... Costo so much fun. I would give anything to be back at work.
Wednesday 20 June 2012
Update
I just addded a new page today, you will find it on the right-hand side. might be a better explination or at least its the way i understand what this illness is, in my own words
Tuesday 19 June 2012
Uneventful
Ok so end of Tuesday, not much to say, been basically a boring day, with a little pain which is great. I just realised that I got this sexy new blog, but what will I write when have uneventful days like today. Hmmmm suggestions please. Oh btw if your wondering what's happening with my history page,it's not complete, I will try write more asap, but right now, I'm not in the mood. Watch this space.
Monday 18 June 2012
Good day
A good day for me, little pain but my meds have managed it. Even found time to do some spring cleaning...lol
I miss going to work.
I miss going to work.
Sunday 17 June 2012
Fathers Day
Children are a gift from god. Woke up this morning usual pains. But my son was standing over me with coffee and special toast (with "No.1 Dad) embossed in it....how to start your day with a smile.
Little while later my princess brings me a beautiful card, all made by herself. Is was great. I'll have to work out how to put photos up here...
Any way enough from me for now, I'm off to enjoy my day.
Brilliant day with my kids, if only every day was like it lol.
Little while later my princess brings me a beautiful card, all made by herself. Is was great. I'll have to work out how to put photos up here...
Any way enough from me for now, I'm off to enjoy my day.
Brilliant day with my kids, if only every day was like it lol.
Saturday 16 June 2012
Day 2
So here we are day 2 of my blog, woke up today feeling like I had been drinking last night, boy what a hangover. Also my back felt like someone had been punching me in the chest and back. I only got a couple hours sleep finally fell asleep about 4am up again at 6am. This illness is so cruel.Well I took my morning meds, at about 10am but didn't help much, sat on the bed iPad in hand, browsing and waiting for the pain to calm down. Another lot of meds at 2pm, finally starting to feel better. If this keeps up, I might try and go out. Been a while since I visited family. If your new to this page, checkout my history & about me pages, to find out more about me living with Costochondritis.
It just goes to show, sometimes you just have to push yourself that little bit more. I managed to get out yesterday, have a nice family get together. Little music, a sneeky drink, some very old dance moves....! I probably should of not done all that dancing. But you gotta have fun sometimes. Or u will end up being, the sick person who just moans about how this illness stole your life...!
It just goes to show, sometimes you just have to push yourself that little bit more. I managed to get out yesterday, have a nice family get together. Little music, a sneeky drink, some very old dance moves....! I probably should of not done all that dancing. But you gotta have fun sometimes. Or u will end up being, the sick person who just moans about how this illness stole your life...!
Welcome
Hello friend
Thank you for visiting my blog website, now I am new to this ; so please be gentle. it will improve with time.
This blog is about my life as a victim of "Costochondritis" an illness that few people know about, or understand. I am hoping that after reading my pages you will have a better understanding. and you will know more about me and my life.
Well thanks for reading.
Regards
Cleveland
This blog is about my life as a victim of "Costochondritis" an illness that few people know about, or understand. I am hoping that after reading my pages you will have a better understanding. and you will know more about me and my life.
Well thanks for reading.
Regards
Cleveland
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